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Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

Frequently Asked Questions

Below are some of the questions that are frequently asked by patients and families.  Click on one of these categories for FAQ's relevant to that area.  If you have a question that isn't answered here, please do not hesitate to contact us.

Clinic AppointmentsGetting to the Heart CentreGetting HelpInformation for kids
Test & ProceduresStaying in HospitalWhat do I do?For Doctors
News & EventsInformation for Visitors    

 

You'll find more information about this on the Admission or Surgery page.  Each has a link to the cardiac surgery manual which gives a good overview of what to expect when coming in to hospital.

Hospitalisation and surgery can be a frightening and overwhelming prospect for children of all ages. As infants cannot understand verbal explanations, preparation ahead of time is minimal. However, recognising what may be stressful for your baby during their stay and using this as a basis for planning can help decrease their fear and anxiety and enhance coping.

 

What are the common stressors for infants?

  • New and different routines
  • Unfamiliar environment
  • Separation from parents
  • Having many different caregivers
  • Parental stress

 

What can I do to support my child?

  • Keep your baby’s routine as normal as possible in the lead up to hospitalisation
  • Let the nursing staff know your baby’s usual routine so , where possible, they can follow it
  • Bring your baby’s favourite comforters (e.g. blanket, soft toy or dummy) and some soothing music to create a more familiar environment
  • Try to organise for at least one parent or caregiver to be with your child as much as possible so that they will have familiar touch, voice and smile.
  • Nurse or cuddle your baby as often as possible.
  • If you do need to leave for a period of time, consider leaving one of your belongings, such as a T-shirt  or blanket,. Your baby will find comfort in snuggling into something that smells like you.
  • Your baby will sense if you’re anxious or stressed so try to remain calm. One way of doing this is by asking questions and keeping well informed about your child and their progress.

 

For further information, please contact:
Karen Weir
Child Life Therapy Department
(02) 9845 3717

Hospitalisation and surgery can be a frightening and overwhelming prospect for children of all ages. Recognising what may be stressful for your child during their hospital stay and preparing them ahead of time can decrease misunderstanding, fear and anxiety and enhance coping.

What are the common stressors/fears for toddlers?

  • Separation from parents/caregivers
  • Being in contact with strangers
  • Unfamiliar environment
  • Different routine
  • Medical equipment that looks and sounds scary


What can I do to support my child?

  • Briefly tell your child about their upcoming hospitalisation one to two days beforehand using simple and positive language.
  • Allow them to choose a favourite toy or object to bring to hospital.
  • Arrange to have one familiar caregiver stay with the child at all times, where possible. If this is not possible, leave something belonging to a parent or caregiver.
  • Let the nursing staff know your child’s usual routine so , where possible, they can follow it.
  • Read age-appropriate books about hospital.
  • Purchase a toy doctor’s kit which can be used for role-play.
  • As toddlers are not able to easily verbalise their fears, it is normal for them to cry or be clingy before, during and after hospitalisation. Be patient and provide a lot of reassurance.


For further information, please contact:
Karen Weir
Child Life Therapy Department
(02) 9845 3717

Hospitalisation and surgery can be a frightening and overwhelming prospect for children of all ages. Recognising what may be stressful for your child during their hospital stay and preparing them ahead of time can decrease misunderstanding, fear and anxiety and enhance coping.


What are the common stressors/fears for preschoolers?

  • Being separated from family and caregivers.
  • Being in pain
  • Having a part of their body damaged or injured
  • They have vivid imaginations and may be more frightened of their own fantasties than what will actually happen.
  • They may believe hospitalisation is punishment for an unconnected event.


What can I do to support my child?

  • Tell your child about hospitalisation about three to five days in advance. Use simple and positive language and answer their questions honestly, especially about any discomfort that may be felt.
  • Try to use ‘soft’ or the least frightening language possible e.g. ‘make a small opening’ instead of ‘cut.’
  • Make sure your child knows why he or she is coming to hospital and reassure them that nothing they did caused the illness.
  • Read age-appropriate books about visiting the hospital.
  • Engage in role play with a toy medical kit.
  • Arrange a pre-admission tour with a child life therapist.
  • Allow your child to help pack his or her suitcase including any favourite toys, books and photos that will serve as comforters.
  • Bring along a favourite pillow or doona.
  • Reassure you child it is OK to cry and express their feelings
     

For further information, please contact:
Karen Weir
Child Life Therapy Department
(02) 9845 3717

Hospitalisation and surgery can be a frightening and overwhelming prospect for children of all ages. Recognising what may be stressful for your child during their hospital stay and preparing them ahead of time can decrease misunderstanding, fear and anxiety and enhance coping.


What are the common stressors/fears for school-age children?

  • Going to sleep during an operation and not waking up
  • Loss of privacy and control
  • Being separated from family and friends
  • Pain or the possibility of pain
  • Dying during surgery or while in hospital


What can I do to support my child?

  • Begin talking to your child one or two weeks before hospitalisation/surgery. Answer questions honestly. Check for understanding by having your child explain back to you what is going to happen.
  • Read books and play ‘hospital’ with a toy medical kit.
  • Let your child pack their own suitcase.
  • Bring along a favourite pillow or quilt.
  • Organise a pre-admission tour with a Child Life Therapist.
  • Reassure your child that anaesthetic is a medicine that helps them sleep for a little while so they don’t feel, see or hear anything during the operation and that they will wake up when it is over.
  • Encourage your child’s friends/school to visit or keep in contact via telephone, letters, email or text.
  • Offer the child as much privacy as possible and as many choices as readily available before and during hospitalisation.
  • Practice coping strategies such as counting slowly and breathing deeply in through the nose and out through the mouth.


For further information, please contact:
Karen Weir
Child Life Therapy Department
(02) 9845 3717

Hospitalisation and surgery can be a frightening and overwhelming prospect for children of all ages. Recognising what may be stressful for your child during their hospital stay and preparing them ahead of time can decrease misunderstanding, fear and anxiety and enhance coping.

What are the common stressors/fears for adolescents?

  • Loss of control and independence
  • Loss of privacy
  • Separation from and loss of status amongst peers
  • Changes/damage to their body and appearance


What can I do to support my child?

  • Include adolescents in all discussions and decisions about their care.
  • Support them to make a list of their own questions to ask the medical team.
  • Encourage research and preparation.
  • Invite your child’s friends to visit the hospital or keep in contact via email, letters, text or phone.
  • Provide your adolescent with a  notebook or journal in which to express their thoughts and feelings. Reassure them that it is ok to feel as they do.
  • Respect their privacy at all times.
  • Encourage your adolescent to bring a few items from home e.g. books, computer, music, bed linen etc.

 

For further information, please contact:
Karen Weir
Child Life Therapy Department
(02) 9845 3717

A child’s illness or hospitalisation has the potential to affect the entire family, including their brothers and sisters. Siblings may experience a wide range of feelings and concerns and may struggle to understand and come to terms with changes in family life and routines. Being aware of their possible reactions and preparing them ahead of time can decrease misunderstanding, fear and anxiety and enhance coping.

 

What are some common reactions of siblings?

  • Guilt: Siblings may feel responsible for their brother or sisters hospitalisation and think that they have said or done something to cause it.
  • Fear: They may worry that they will “catch” the illness and get sick too.
  • Jealousy/Anger: They may be upset and resentful that their brother or sister is getting so much attention and things at home have changed
  • Loneliness: They may miss having you around to comfort them or their brother or sister to play with
  • Abandonment: They may feel that you don’t love them anymore
  • Worried/Confused: They may be confused about what is happening and why and worry about what will happen in the future


What can I do to support my other children?

  • Be honest- talk to siblings about what is happening and why. Allow them to ask questions.
  • Involve siblings when preparing your other child for hospital. Encourage them to help pack their brother or sister’s favourite toys, books or games.
  • Reassure them that nothing they said or did made their sibling sick and they cannot catch it.
  • Make sure siblings known another responsible adult will be caring for them while you are at hospital and you will come back as soon as you can.
  • Leave a security object with the siblings if appropriate.
  • Maintain as close to your normal routine as possible e.g. school attendance, mealtimes, bedtimes
  • Set aside time to spend with siblings. This makes them feel that they are important too.
  • ?Where possible, bring siblings to the hospital to visit.
  • Encourage siblings to draw pictures, write letters or send cards to their brother or sister in hospital and vice versa.

One parent/carer can stay at the child's bedside on a fold-out bed in Edgar Stephen Ward.

If your child is in ICU, one or both parents/carers can stay in the Parents Hostel.  Priority is given to parents of children in ICU and bookings can be made with the Parents Hostel Coordinator on Level 2 on the day of surgery.

If your child is on Edgar Stephen Ward then siblings are very welcome to visit, as are other family members and friends.  Visiting hours are 8am to 8pm, but we prefer visitors not to come between 12pm and 2pm so that the kids can have some quiet time.  We also ask that visitors stay away from the hospital if they have a cold or flu or other illnesses as if our patients catch anything it can impact on their recovery.

If your child is in ICU (either Grace Centre for Newborn Care or the Paediatric Intensive Care Unit), it is best to discuss having siblings or anyone else visit with the nurse looking after your child.

It is a good idea to prepare siblings for their visit by explaining what they might see and how their brother or sister may behave.  If you would like to talk to someone about how to prepare your child for a visit to the hospital, please contact Child Life Therapy on (02) 9845 3717.

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